Wednesday, April 20, 2011

Zavier Update

DH is arranging things at work so he will be driving us out to Nashville to see Zavier!

We can get a less expensive room not as close to Vanderbilt Hospital and just drive in to the hospital daily.

This works out best for us and we are blessed to be able to do it this way.

The few rooms available at the Hospitality House and Ronald MacDonald House I feel need to go to families of children so very critically ill who cannot afford a room elsewhere.

There are not really that many rooms for the amount of folks that need them!

This being Easter weekend also means more folks visiting!

We are making arrangements to be leaving Friday or Sat .

For us it is an 11 hr or so drive of about 700 miles.

Doing a 2-3 day visit!.

I just have to see our sweetie and love on him!

Phones are okay but not the same as being there.

Talked with Kristy yesterday and things are looking up according to Zavier’s docs.! YES!!!!

Docs say the aggressive protocol they are doing is working and we are back from the edge somewhat.

Kidney is function better and other affected areas as well.

They have identified the tumor/cancer ‘type’ and radiation fights it well.

That will begin after they run a couple more tests/scans today.

There is a chance Zavier may not walk again but ya know we just never know what the future may hold!

I will not give up on him in any way in my heart and soul!

Working on his ‘Granny Loves Me’ Comfort Quilt now.

As many as I have done for others never thought I would be doing one for one of my own grand children!

It is helping me stay busy, focused and positive too!

We all have that need to DO SOMETHING at times like these, so this is may way of doing that!

The extra treat for this Grandma is I get to see the other 5 kiddoes too at least for a day on this short run out to Tennessee!!!!

Not sure if I will be able to email or post any while there .

If not will do so as soon as I get back!

Once again thanks so much for caring about a child and a Grandmother you have never met!

Thanks to our sweet Micki for posting about sending Zavier cards on her blog !!

The offers of help from folks we have never met has touched my heart!

We are all so blessed to be a part of a sewing /quilting community of such wonderful caring folks!

You are all awesome!!!!!

May God bless and keep you!




  1. Have a safe trip and enjoy your time there with him! :0)

  2. My love and thoughts go with you. Have a safe trip and give Zavier a big hug from me.
    Maria from Aussie.

  3. I was thinking about him this afternoon and you posted an update. How timely!

    I'm glad you found a place to stay. Thew news sounds very hopeful! And ggood news about better kidney function. Yay!

    I'll keep praying and will wave as we drive by... Headed down to visit our grandchild, too!


  4. Thanks so much for the update. Be safe...give extra hugs....

  5. that all sounds like good news!! I know you both are looking forward to see him and sure he will be so happy to have the two of you there for a few days!

    Keeping on praying on this side of the Mighty James for Zavier and all of you!!!

  6. Have a safe trip, Lola, and enjoy spending time with him and the others. They will all love having you there.

    We continue to pray for Zavier.

  7. Sounds like there is some promising news. Safe drive there give that young man a great big hug for all of us. thoughts and prayers for Zavier and the rest of you.

  8. Thanks so much for the update. Have a safe trip. My prayers go with you.

  9. Hi Lola--thank you for the update--sometimes it is so hard to get these prayer requests and not know how things are coming along!! You have a safe trip and enjoy all those grandbabies this week end--and seeing as Zavier is soo young--he may surprise you and get completely well and walk again--that's my prayer!!!
    Hugs, love, di

  10. Sending prayers your way Lola! I hope for a miracle! Hugs!

  11. Wishing you a safe journey. I'm sure lots of Grandma hugs will do Zavier and your other grandtots the world of good. Hugs~Ann.

  12. Thanks for the update!! Continued Prayers & have a safe trip!

  13. Wishing all a safe journey. Just being there by his side. I can't imagine how you must feel right now. My Heart goes out to you and your family.
    Big Hugs.

  14. Praying all will be well...and hoping you all find the strength you need during this trying time...
    Don't know you but I too am a gran and cannot imagine how difficult this must be for all of you
    Hugs from south africa

  15. Oh my! I am so sorry for your heartache. I will add him to my prayer list! Please take care of yourself.

  16. Lola, praying for Zavier, you and your family. Have a safe trip and visit with the family.


Luv hear'in from ya!!